Working Notes 2.0

useful wee contextual post re IMB’s social computing guidelines, as an example of how to do it corporately.

The best example going of a corporate governance protocol for social computing. Also it’s kept under review rather han being forgotten once drafted, which is a good sign

Citizen-centred governance involves new ways of enabling local people, working with statutory and other agencies, to decide how public services can improve their quality of life. This study examined the relationship between new governance structures and t

A ‘collaborative Medical Encyclopedia’ - foused mainly, thus far, on cardiology & cardiovascular subspecialities, but broadening its scope gradually Anyone can read, but to post/edit you have to be a certificated practitioner, and only the editors are all

Wiki containing (May 0 c 500 articles on clinical informatics

“a series of non-commercial free web sites, discussion groups (mailing lists), chat room all dedicated to helping men fight prostate cancer. It has been developed and funded by Don Cooley, a prostate cancer patient himself, …”

“Jeanne Sather, author of The Assertive Cancer Patient, is an outspoken advocate for the cancer patient’s point of view. She has written about taking part in clinical trials, living with incurable cancer, “pink ribbon” marketing run amok, strategies

“A weekly podcast looking at the top medical stories of the week for people who want to become informed participants in their own health care.” Each ‘cast covers a number of medical topics.

selected ‘pozcasts’ on HIV/AIDS. From the look of the list, all videos rather than pure audio

Short list of USA Gov’t podcasts… This Means You(!)

WHYY is “public broadcasting…serving southeastern Pennsylvania, Delaware and South Jersey” This page is a list of podcasts from Feb 2008, including one on Second Life (on 02/18/0 and its role in physical & mental health.

Cleveland Hosp produces podcasts, video, etc etc. This page is a list of their videocasts

A sort of ‘HealthTube’ maybe - one can upload a video, and form a community around it. Or join in with others. Not sure of the business model. Perhaps I should view the video.

Health 2.0 page from Amy Tenderich’s blog. A person with diabetes’ voice, and lots more besides about health experiences with this problem. Check the main page

As at 02/06/08, 56,600 hits when searching for ’surgery’ in YouTube. But I note that the seventh listed is an Apple Mac promo, and the ninth is a clip from Monty Python. So, caveat emptor. Unles you are an MP fan.

First 10 listed of 500+ groups re diabetes, on Facebook

‘expert-supported’ health community. Health resources reviewed & rated by experts, with additional community reviews & ratings. Also communities per se(?) For the ‘prosumer’, they say. Hand-indexing the health web, akin to Yahoo in its early days, perhaps

A highly social-network-oriented resource for younger (<40) cancer survivors and caregivers. Established by a young student diagnosed with a form of pediatric brain cancer

targetted messages within the context of individual health plans - at the moment it seems all ‘push’ and no ’social’ though they say they are working on this. Oriented towards changing health-related behaviours, they say.

simply AMAZING visualisations - how do they do it??

for presenting a flickr stream

a brief note on the likely uptake of new collaboration technologies, from the chief scientist at Accenture - and that’s what’s important about it. Not much new is said, but this is a senior person in one of the top consultancy firms

Crossover Health is dedicated to ensuring that these technologies are effectively applied to health care delivery in order to create a true consumer market for optimal health.
Suggested by the ‘Wisdom of Patients’ Report as the source of a definition for

Not sure about the ‘community’ aspect of this - although it may be that I have just yet to discover it - but this is ‘human-powered search’ with a focus on health questions

No one, in any health department or government agency, knows all the things needed to cope with an influenza pandemic. But it is likely someone knows something about some aspect of each of them and if we can pool and share our knowledge we can advance pre

Good list of medical wikis if you are seeking some examples of this technology. See also his posts undeer category ‘wiki’ on his blog

a growing body of evidence is suggesting that traditional social networks play a surprisingly powerful and underrecognized role in influencing how people behave.

“BioWizard is a web-based platform for communally submitting and evaluating professional biomedical literature and is intended to aid clinicians and researchers in the discovery of recent literature in their disciplines that other users have rated to be h

Frm DailyStrength’s Wikipedia entry: “social networking website where users share emotional support and discuss their struggles and successes with a wide variety of medical, psychological and general life challenges. [1] As of November 4, 2007, DailyStren

Subscription-based portal for healthcare practitioners only. Intended benefits:
Communication through forums (e.g., exchange of advice, queries, etc.)
Information on scientific research data bases, publications, press releases, etc.
Cooperation throu

Commercial offering - a web-based second opnion service?
From their press release: “It provides platform to connect patients, referring doctors and experts. The patient can prepare a case which is similar to that when a patient represents a case to a doc

early ‘taster’ for a PHR

Microsoft’s PHR. But not just a PHR. Linked with various assoc sites & services

U.S. Non-profit portal for knowledge mgt/decision-support in health. A sort of B2P offering, rather than P2P, I think.

Created by a person, for people A (patient - though they wouldn’t see themslves as limited to that, of course) support group for people living with multiple sclerosis

It says on the tin “search symptoms, diagnoses, physicians, drugs, and medical procedures”. But (an example of the effects of reading a review first…) see the caveats outlined by a medical librarian giving it a test drive, at http://medicallibrarianmave

useful wee collection of ‘on-line self-diagnosis’ (aka symptoms-based search) tools. Much better Aka ‘hypochondria 2.0′!

Grandaddy (founded 1993-4) patient community portal where you can ask a doctor too. Large volume traffic (5.5m visitors/month, quoted) Further overview see wikipedia article at http://en.wikipedia.org/wiki/MedHelp

Commercial news aggregator service re prescription drugs - new ones, experiences, adverse reactions etc etc. Can link through to full articles, say whether the snippet was useful to you or not, etc. etc. A partner site with DailyStrength.

Post your own sickness info/location (anonymously), and check for clusters of same. Tech. - Mashup with Google maps.

FRom the ‘about’ page:
“This website has been developed to help you make choices about your health, from lifestyle decisions about things like smoking, drinking and exercise, through to the practical aspects of finding and using NHS services when you ne

No-profit offering for enabling patients to share their experiences of NHS care, and in some cases - they are putting quite a lot of effort into developing dialogue - get a direct response from the service provider concerned. Thumbs well up for this from

A patient-founded way for patients to exchange experiences - in a diary format - of how they cope with their health problems. Plus some news, helpful web sites, etc.

Free/subscription service for online monitoring ofblood sugar levels for people with diabetes. Can get graphs, overview data, message healthcare providers, share with other patients etc. Can access/ send data from mobile, via Twitter, email etc. Various r

At the spikier end of Health 2.0 - patients rate doctors. Doctors tend to be miffed…

From their ‘about’ page:
“Have either you or a close relative been in hospital in recent months. How was the experience ?
Irishhealth.com’s ‘Rate My Hospital’ facility gives you the opportunity to tell us how the hospital scored under a range of differe

Health-focused search engine. For ‘The Impatient’ perhaps, or alternatively, all-tidied-up, a bit like AOL and the web generally,some while back. Hmmmn, see the critical comments at http://davidrothman.net/2007/08/02/kosmixs-righthealthcom-vs-the-dyson-va

what it says on the tin - common format files converted & emailed back to you

really useful - like the best tools, clearly focused on a single function!

Structures of Participation in Digital Culture, edited by SSRC Program Director Joe Karaganis, explores digital technologies that are engines of cultural innovation, from the virtualization of group networks and social identities to the digital convergenc

You enter the URL of a website, that you want to consider from the point of view of what del.ici.ous users think it about, over time…and it graphs this.. I guess it analyses the tag cloud for the URL, & the way this shifts. Nifty

Is the outbreak of cancer videos, bulimia blogs and other forms of “user generated” medical information a healthy trend?

This wiki has been set up as a service to the community of visionaries, entrepreneurs, intrapreneurs, policy makers, and professionals who are working on fundamentally redefining the healthcare industry along the lines of “Web 2.0″. This movement was init

People are drawn to web-based social networks because they trust them. This is as true for health as it is for car shopping music-sharing, and restaurant reviews.

Citizens’ trust in institutions is eroding. In recent months, consumer confidence has plu

Social media on the Internet are empowering, engaging, and educating health care consumers and providers. While consumers use social media — including social networks, personal blogging, wikis, video-sharing, and other formats — for emotional support, t

There is more evidence that remote health care can improve health outcomes. Say ‘hello’ to the Virtual Integrated Practice (VIP).

The term was coined by the Rush-Presbyterian Medical Center, where a team has been refining the VIP model for the past f

Consumers, at least Californians, do a lot of looking for health information on the Internet — but very little health management.

California HealthCare Foundation (CHCF) has taken a snapshot of Californians’ use of the Internet in health care. The p